Sunday, August 17

psa (public service annoucement)

Sigh.

It is with a bit of a heavy heart that I feel the need to give a bit of a warning to all of you. Don't believe everything you read (on the internet) and take blogs with a grain of salt. I will not bore you with the details, nor the drama, but in summary: I had been following a blog for the past few months of a girl with Cystic Fibrosis who was awaiting a transplant, got one and then was having a horrid time recovering from it.

Over the weekend it broke that the blog was a farce. There was no girl with CF, no girl struggling through a painful recovery, no girl receiving our thoughts and prayers. Just a very sad, twisted mind behind it all, seeking attention. It has sent a shock wave through the online CF community in more ways than one. I don't really care to dwell on that drama, and hope to move forward like so many other readers of that blog (there were daily updates so many of us were checking each morning to see how she was).

But I did feel the need to heed my own advice and so have only put links on the side bars to blogs that I can verify (people who are my friends or those whom have proven themselves valid from outside sources). I will be careful to link to sites who have a good reputation as far as I can tell, but please don't take my word for it. And if in the future, you have doubts to anything I link to, please let me know. I don't care to be part of a web of false information (as can so easily happen via internet).

On a lighter note:

This is courtesy of my lovely husband, who took it upon reaching the summit of Grays (or Torreys - can't remember which) a fourteener in Colorado.

When it comes to CF I would much rather dwell on pictures like this than on the drama unearthed this past weekend.

2 comments:

doctorbarefoot said...

i have had a couple CF kids as patients so far, and their plucky spirit always always reminds me of your fortitude and beautiful enthusiasm. just wanted you to know...

lindsay said...

thanks, amanda. that's very sweet of you to say. we do tend to be a 'spirited' bunch!